Update

I’ve spent more on co-pays lately than groceries (no really, I have). From CT scans to weird hearing tests, to meetings with audiologists and my ENT, I feel like I’ve been living in their office. The good news is that it’s not a brain tumor and there are no blockages in my arteries or veins. So yay for that! The bad news is…well, it’s complicated.

The official diagnosis is something called Superior Semi-Circular Canal Dehiscence Syndrome (SCDS for short). Essentially, there is a piece of bone in my skull, which has either broken off or has simply worn away, causing a gap between my ear and brain. My CT scan results showed a pretty clear difference between my right and left side, and some subsequent testing I’ve had done has confirmed it.  My doctor has recommended I move forward with surgery to fix the broken bone. ::Deep breaths:: It’s not a simple or easy surgery and there are only 3-5ish specialists in the country who do this type of surgery, the best ones being at UCLA and Johns Hopkins.

There is a surgeon in Colorado who has some experience with this surgery (how much, I’m not sure yet). So I have an appointment with him on Monday to just ask questions and get a feel for his confidence. I also have a consultation set for January 15th (I’ll go in sooner if I can!) at UCLA with a neurosurgeon and neurotologist. Then we’ll figure out when to schedule surgery. That’s about all I know at this point.

I’m doing pretty well all things considered. Last week was a hard week. Really hard. I felt like fear and discouragement were suffocating me.  But this week has been better! And it certainly doesn’t hurt when your sweet husband brings home flowers and candy and takes you out on dates every other day. He is the best!

I’m trying to keep my eyes focused on Jesus. I’ve been praying a lot for God’s peace and comfort. He is so quick to come to our rescue when we are troubled! He’s been so faithful to me up to this point. He has brought me through so much, I know He’ll continue to strengthen me and support me through this too!

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3 thoughts on “Update

  1. Becky, I am so sorry to hear this! I was hoping what you were experiencing in your ear was going to be something trivial and easy to fix, I am shocked that it turns out to be something so significant. I am sending major thoughts and prayers your way. Please continue to keep us updated on your progress..

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  2. What a scary time! I will be praying for you to find the right doctor and for peace during the uncertainty. Jesus is here for you, continue to pour all your worries into Him!

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